Sheri Sobrato Brisson Brain Cancer Survivorship Program
Brain tumors can have lasting effects, impacting a survivor’s ability to work and interact with others. This program offers neurocognitive consultation and rehabilitation, exercise counseling, wellness classes, education and peer support to maximize quality of life for survivors.
Our survivorship program addresses the question, “What does it mean to live a great life with brain cancer?” and “How can we support our patients and families in doing so?” Our team of specialists have created programming that offers survivors both individual consultation as well as group instruction on achieving their wellness goals.
The mission of the Sheri Sobrato Brisson Brain Cancer Survivorship Program is to enhance the wellness and quality of life of patients with brain tumors through a collaborative, multidimensional approach focusing on emotional, physical and cognitive health.
The first visit includes:
- A baseline assessment of neurocognitive and motor functions, social structure, psychological, and language capabilities
- A review of medical imaging and prior oncological history
- Caregiver and family interviews
- A consultation to discuss relevant symptoms and concerns
- A rehabilitative plan, devised by experts in a range of rehabilitative therapies, to maximize quality of life and improve existing motor, language and cognitive limitations
Our team provides:
- A full summary of findings that focus on the patient and his or her short-term and long-term needs
- A summary of services and recommendations for caregivers
- Strategies to maximize and improve any existing motor, language and cognitive deficits
- A personalized comprehensive care plan
- Exercise counseling sessions
The neurocognitive consultation service is provided by Christina Weyer Jamora, PhD and Alexa Greenstein, NP. A comprehensive consultation & management plan will be determined as it relates to each patient's individual quality of life goals. Elements include, and are not limited to:
- Resource linkage
- Caregiver training
- Workplace accommodation advocacy
- Return to work intervention
- Legacy projects
- Practical skills
- Compensatory strategies to reduce cognitive slips
Every aspect of the care plan is based on the unique needs, values and preferences of patients and their families. The timing and frequency of subsequent visits, treatment, rehabilitation and assessments will depend upon the patient’s individual care plan. These follow-up appointments allow for continued monitoring and support throughout the care process. As needs change, so will the treatment plan, focusing on both length of survival and quality of life.
Learn how the Christina Capurro Sand Brain Tumor Fund has extended similar survivor wellness services and resources at Marin General Hospital and Napa Valley Neurosurgery Clinic.
* Patients eligible for this program must have radiographically or clinically stable disease and be off all oncological therapies.
UCSF Survivor Resources
- Coping with Brain Cancer During COVID-19 (Video)
- Coping with Forgetfulness (Video)
- Exercise Counseling Program
- Integrative Approaches to Brain Cancer Survivorship
- Living Well Webinar Series
- Neuro-Oncology Survivors' Peer Support Program
- Survivor Story: Strategies for Living Well
UCSF Survivorship Email List
Stay informed about upcoming events and special services specifically designed to help brain tumor patients thrive.
A Program Inspired by Sheri Sobrato Brisson
The Sheri Sobrato Brisson Brain Cancer Survivor Program is named in honor of Sheri Sobrato Brisson, who was treated at UCSF for brain cancer, and is a long-time survivor. Diagnosed with a malignant brain tumor as a young adult, Ms. Brisson was inspired to help address the unique challenges facing survivors, particularly as they go back to work or resume their daily activities.
Ms. Brisson was instrumental in establishing the Sheri Sobrato Brisson Brain Cancer Survivor Program, which continues through support from philanthropic donations.
This project has been made possible in part by a grant from the Resonance Philanthropies Fund, an advised fund of Silicon Valley Community Foundation.