UCSF Neuro-Oncology Gordon Murray Caregiver Program
At UCSF, we understand that a brain tumor diagnosis affects not only our patients, but also their families and loved ones. The goal of this program is to ensure that family members and loved ones have the resources they need to feel prepared for their new roles as caregivers.
A caregiver team — including a nurse, a social worker, and a program coordinator — is dedicated to meet the specific needs of those caring for adult patients with brain tumors. We commonly advise caregivers on the following topics:
- Disease information, including symptoms, side effects and what to expect
- Navigating the healthcare system
- Financial, disability and insurance information
- Guidance for completing advanced health care directives
- Connecting with local and community supportive care resources
- Caregiver-to-caregiver peer support
- Educational workshops designed for neuro-oncology caregivers
- Support groups
If you are the caregiver of a UCSF Neuro-Oncology patient, or a medical institution looking to develop a similar program, please feel free to contact us at (415) 514-5674.
Family Advisory Council
To ensure that we are supporting the needs of the entire family, we regularly meet with a team of experienced caregivers of brain tumor patients. These members form the Family Advisory Council, and provide input and feedback on programming decisions. Family Advisory Council members also support the program by volunteering at our special events and organizing fundraising efforts. Many members of the council also serve as peer caregivers in our peer-to-peer support program.
UCSF Caregiver Resources
- Orientation to Caregiving Handbook
- Transitions in Care Handbook
- Neurosurgery Inpatient Caregiver Program: A Guide to Post-Operative Caregiving at Home
Family and Caregiver Events
- UCSF Neuro-Oncology Caregiver Retreat
- Milton Marks Neuro-Oncology Family Camp
- Monthly Support Group
- Events Calendar
Resources for Healthcare Providers
- Orientación para el cuidado
- Transiciones en el cuidado de pacientes con tumores cerebrales: Cuidados Paliativos y de Hospicio
Other Caregiver Resources
- Caregiver Information: List of Resources
- Net of Care: Caregiving resources provided by Beth Israel University Hospital/Albert Einstein College of Medicine
- Lotsa Helping Hands: A care calendar website
- Help for Cancer Caregivers: A personalized self-care web tool for caregivers
- Family Caregiver Alliance: Provides caregiving resources around the country with educational literature available on various caregiver topics.
- Neurology Caregiver Corner: More resources for caregivers of patients with neurological diseases
A Program Inspired by Gordon Murray
The UCSF Neuro-Oncology Gordon Murray Caregiver Program is named in honor of Gordon Murray, who was treated at UCSF for brain cancer and passed away in 2011. Grateful for the state-of-art care Mr. Murray received at UCSF, his wife Randi Murray led a fundraising campaign to build a program that helps families get the resources they need throughout the difficult experience of diagnosis, treatment, and bereavement.
Joined by philanthropists Cathy and Mike Podell, and Marritje and Jamie Greene, the Murray family raised over $2 million to establish the UCSF Neuro-Oncology Gordon Murray Caregiver Program, in addition to funding the construction of additional research laboratories at the Brain Tumor Center. Continued support comes from philanthropic donations.